SupportSight Philadelphia Region - Northeast, Pennsylvania

Next Seminar: To be determined

Next Meeting: To be determined

View 2007-2008 Meeting Schedule

Previous Seminars:

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Small Group Meetings:

Meeting Schedule

NE Philadelphia (all meetings 10:00 AM to noon)
Location:
Klein Branch Jewish Community Center
10100 Jamison Avenue
Philadelphia, PA 19116
Dates:

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Previous Seminars:

May 4, 2008
On May 4, 2008, Mid Atlantic Retina and the Macula Vision Research Foundation (MVRF) teamed up to give a seminar on macular degeneration, created to disseminate the latest information on the disease, present strategies for coping and field questions from Philadelphia-area residents. The seminar, which was both free and open to the public, was held at the Klein Branch Jewish Community Center on Jamison Ave.

The seminar started off with a presentation from MVRF Executive Director Lea Bramnick about the history and mission of the organization. Bramnick emphasized the importance of organizations such as the MVRF in disseminating the latest information, helping those affected by the disease lead their fullest possible lives and in raising funds to find a cure.

Dr. Carl Regillo was on hand to give a presentation about the latest research and treatment strategies for macular degeneration. Dr. Regillo informed the attentive and lively audience about the recent body of research and emerging information about treatments and diagnosis for macular degeneration. Dr. Regillo closed his session by turning it over to the eager audience for questions about his presentation and anything else they wanted to know.

A very informative presentation about the services and adaptive aids that are available for visually impaired people was given by Scott Edmonds, OD. Scott addressed a number of resources that people with macular degeneration and other visual impairments can utilize to better their lives and cope with their disease. Scott presented information about services available nationally and those specific to Philadelphia.

Also on hand was Mary Betty Roeder, who presented a fantastic talk about her first-hand account of living with macular degeneration and how to not only live, but live well with the disease. Equal parts information and inspiration, Mary's talk was well received by the appreciative audience.

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Philadelphia, Small Group Meetings

November 2007
In November, the Macula Vision Research Foundation (MVRF) and Mid Atlantic Retina teamed up to conduct a series of small group support meetings in the Philadelphia area. These sessions, created for people with or people seeking to learn more about macular degeneration, provided an excellent opportunity for area residents to share information, coping methods and resources with each other.

This two-hour session was focused on the general health aspect of macular degeneration and what can be done to slow the progression of the disease. The feature presentation at each meeting, “Be Health Wise – Helping To Prevent AMD and/or Slow Its Progression” was presented by Susan Harmelin, Licensed Dietician and Nutritionist.

Harmelin reviewed the latest information about how to maintain a lifestyle that promotes not just eye health, but general health as well. She shared the latest research information about preventing macular degeneration and slowing the disease in those that have it. The session closed with a Q&A on the presentation and addressed general macular degeneration questions as well.

Participants were encouraged to share their personal experiences in the course of both presentations, as history has shown us that shared experiences often lead to greater collective learning.

Throughout the month of November, these small group support sessions were held in Center City Philadelphia, Northeast Philadelphia and Elkins Park.

As well, David Fischer, M.D., Joseph Maguire, M.D. and Sunir Garg, M.D. teamed up with the MVRF to present this same session in nearby Wynnewood, PA, in November.

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Contact

Would you like to volunteer?
Do you need more information?

SupportSight

Macula Vision Research Foundation SupportSight
Five Tower Bridge
300 Barr Harbor Drive, Suite 600
West Conshohocken, PA 19428-2984

Please call Lea Bramnick
Toll free 1-866-462-2852
1-866-4-macula
Email: lea@mvrf.org
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