The seminar opened with a presentation from MVRF Executive Director Lea Bramnick, who was on hand to talk about the history and mission of the organization. Bramnick emphasized the importance of organizations such as the MVRF in disseminating the latest information, helping those affected by the disease lead their fullest possible lives and in raising funds to find a cure.
That session was followed by a presentation from David L. Parver, M.D. during which he discussed all the latest information about macular degeneration. Dr. Parver covered some of the newest information coming out of research studies and also reviewed the treatment options presently available. He closed his presentation by fielding audience questions, which was clearly appreciated.
Fadi Nasrallah, M.D. was on hand to talk about the depression that can frequently accompany a macular degeneration diagnosis. Dr. Nasrallah spoke about how to cope with the depressed feelings and outlined several strategies that patients can employ to overcome them.
The seminar closed out with a fantastic presentation from Mary Betty Roeder, who was present to give her first-hand account of living with macular degeneration and how to not only live, but live well with the disease. Equal parts information and inspiration, Mary's talk was well received by the eager and appreciative audience.
Back to topThe group was welcomed by Lea S. Bramnick, who introduced the speakers and talked about the mission of MVRF, an organization headquartered near Philadelphia, whose singular mission is to raise money for research towards finding the cure, prevention, treatment and a cure for macular degeneration. MVRF is unique in that all of the money raised goes directly towards research projects, as all of the administrative costs are underwritten separately.
Dr. David L. Parver gave an interesting talk about the newest research and treatments for macular degeneration, and he also discussed the potential new information to be learned from AREDS2 (the Age-Related Eye Disease Study 2), a study that began in the Spring of 2007. This study will look at the addition of lutein and other potentially helpful ingredients into the AREDS formula.
Suleiman S. Alibhai talked about low vision services and adaptive aids that were available to the community, pointing out how many different things can make coping with macular degeneration much more manageable.
Proving this point, Mary Betty Roeder then talked to the group about her own experiences living with the condition. Ms. Roeder, a spokesperson for MVRF, travels the country giving inspirational speeches and the tone and tenor of her uplifting talk left people amazed.
Back to topThe seminars were sponsored by the Macula Vision Research Foundation (MVRF) in partnership with Retina Consultants, PC, as part of a nation-wide grassroots program called SupportSight, that holds similar seminars in 23 cities. Held on Thursday, November 17, the seminars were conducted at two separate times and locations in order to make it most convenient for people and maximize attendance. The morning session took place at the Rockville Senior Center, and the evening session at Ring House in Rockville.
The lively program was kicked off by Dr. David Parver, who gave the audience an overview of macular degeneration. Dr. Parver then talked about the latest treatment options available. He was followed by his colleague Dr. Fadi Nasrallah, who discussed the use of vitamin therapy for the treatment of macular degeneration.
Mary Betty Roeder, a motivational speaker who is a national spokesperson for MVRF delighted and stunned the audience with her humorous, honest and inspirational discussion of her own life experiences with macular degeneration. Finally, Lea Bramnick, Executive Director of MVRF, gave the audience a glimpse into the organization behind the program, and discussed their unique mission to support and educate people with the disease.
Back to topThe crowd gathered to hear the impressive and informative speakers. The first was Lea S. Bramnick, Executive Director of MVRF, based outside of Philadelphia. Ms. Bramnick discussed the mission of MVRF and the fundraising goals for supporting research. The organization is unique because one hundred percent of all donations go towards research, as all administrative costs are underwritten. After Ms. Bramnick, David L. Parver, M.D., of Retina Consultants, talked about the newest research and clinical trials for macular degeneration. This disease currently has no known cure, so research is of vital importance.
Suleiman S. Alibhai, O.D., of NOVA Hazel E.R. Widner Low Vision Center discussed low vision services available to the community. Many of these are free of charge and all were of great interest to the audience. Dr. Alibhai also addressed the availability of many adaptive aides for low vision patients.
The morning closed with a motivational speech from Mary Betty Roeder, a patient who lives with macular degeneration. Ms. Roeder spoke of her personal experiences, and her discussion provided a valuable and intimate ending for an informative morning.
Back to topThe purpose of the forum was to provide an overview of the disease for people who have it, and to provide background and helpful information for friends and family members of patients regarding treatments available. An explanation of the Age-Related Eye Disease Study (AREDS) concerning vitamin therapy was particularly helpful. Speakers at the meeting included Leonard Parver, M.D., Robert F. Stephens, M.D., and Fadi Nasrallah, M.D., all physicians in private practice with Retina Consultants, P.C.
Macular DegenerationSpeakers at the Meeting
Dr. Parver provided the audience with an overview on the disease, and Dr. Stephens addressed treatment options for macular degeneration. Dr. Nasrallah discussed the progress of research using vitamin therapy to treat the condition. Additionally, Lea S. Bramnick, Executive Director of the Macula Vision Research Foundation, based in West Conshohocken, Pennsylvania, also addressed the group. She spoke of the Foundation's mission to find the cause, prevention, treatment and cure for macula vision diseases with the goal of saving sight and to provide support and public education about the disease and support to those suffering from macular degeneration. The other speaker, patient Mary Betty Roeder, talked about her personal experiences dealing with the disease. Her inspiring discussion drove home her point that full and meaningful lives can be led by people who suffer from macular degeneration.
Would you like to volunteer?
Do you need more information?
Macula Vision Research Foundation SupportSight
Five Tower Bridge
300 Barr Harbor Drive, Suite 600
West Conshohocken, PA 19428-2984
Please call Lea Bramnick
Toll free 1-866-462-2852
1-866-4-macula
Email: lea@mvrf.org
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Information for local SupportSight groups can be obtained by clicking on city names: